PANDAS / PANS Symposium – October 1, 2022 – Portsmouth, NH
The Alex Manfull Fund – 2022 PANDAS/PANS Symposium – Portsmouth NH
On October 1, 2022, 14 esteemed speakers from around the US and Europe — representing 9 different medical and scientific disciplines — and 80+ highly engaged attendees gathered in Portsmouth, NH for a symposium hosted by The Alex Manfull Fund. It was entitled “PANDAS/PANS: Recognizing, Understanding, and Treating Immune-Mediated Neuropsychiatric Disorders.”
This is what one veteran professional wrote:
“Thanks again for organizing the best and most useful conference I have ever attended.”
We thank our sponsors and the following advocacy groups for their support:
- A foundation that chooses to remain anonymous
- Affinity Express Inc.
- New Hampshire Charitable Foundation
- ASPIRE: The Alliance to Solve PANS and Immune-Related Encephalopathies
- EXPAND, The European Immuno-neuropsychiatric Association
- The JBC PANS & PANDAS Foundation
- EXPAND, The European Immuno-neuropsychiatric Association
- The Louisa Adelynn Johnson Fund for Complex Disease
- NAPPA – National Alliance for PANS / PANDAS Action
- New England Pans/Pandas Association
- Neuroimmune Foundation
- Northwest Pandas/Pans Network
- Wendy Nawara Consulting
We will be posting information-packed posts about the symposium soon. In the meantime, please watch this slide show to get a feel for the positive energy and excitement that permeated our event.
This was an outstanding symposium that gave me hope that effective treatments for PANDAS/PANS are being found. It taught me that the old adage “it takes a village” is true for this cruel affliction.