Advocacy Day on the Hill (June 2, 2023)

On June 2, The Alex Manfull Fund had the immense pleasure of working with the National Alliance of PANS/PANDAS Action (NAPPA) to organize “Advocacy Day on Capitol Hill.” What an amazing, moving, and memorable day! About 60 people from ten states showed up to visit their Congressional and Senate representatives and let them know how important it is to support research into PANDAS and PANS.

We salute Amanda Peel Crowley, Co-founder of NAPPA, and Paul Murphy, TAMF Board Officer, for organizing this effort! A gigantic thank you to all of you who attended or sent us your positive energy.

The second annual Advocacy Day on Capitol Hill will be held on Friday, April 12, 2024. Watch for the details on NAPPA’s Facebook Page and on this website.