By Karen Dandurantnews@seacoastonline.comPublished July 29, 2020
À Table! Château Barbebelle and Gérard Isirdi Come to the Table To Raise Awareness about PANDAS, The Post-Infectious Autoimmune Basal Ganglia Encephalitis That Took the Life of Alex Manfull
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Exhibit of the late Alex Manfull’s artwork opens Dec. 6 at SAACC
Posted Dec 2, 2019 at 1:02 PM The Seacoast African American Cultural Center will participate in the Art ’Round Town on Friday, Dec. 6 with a reception for the exhibit “Art By Alex: A Retrospective.” The exhibit features a selection of… Read More
Symposium addresses rare condition, honors local victim
By Karen Dandurantnews@seacoastonline.comPosted Oct 26, 2019 at 8:41 PM PORTSMOUTH — A symposium held Saturday honored the life of a Portsmouth woman and continued to raise awareness for the rare condition responsible for the loss of her life. Alexandra “Alex” Manfull… Read More
Portsmouth woman succumbs to unusual disease
by Karen Dandurantnews@seacoastonline.comPublished September 13, 2018 PORTSMOUTH – Susan and William “Towny” Manfull of Portsmouth want to raise awareness about the unusual disease that claimed the life of their beloved 26-year-old daughter, Alexandra “Alex” Manfull on Aug…. Read More