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Meet our new VP — Angie Gentile!This is a positi

Meet our new VP — Angie Gentile!This is a position we had not filled until now — we are absolutely thrilled to welcome Angie who brings a wealth of experience in a variety of areas, especially communications and strategic planning, to our board. Actually, as a volunteer for our organization for over a year, Angie has already shared her various skills with us. She writes a great press release.

To read more about our expanding board, read the press release in the bio!

#panspandas
#thealexmanfullfund
#expandingourboard
#va4pa

Getting things ready for the big day. The Alex Man

Getting things ready for the big day. The Alex Manfull Fund PANDAS/PANS Symposium on Saturday, November 2. (Filled to capacity.)

#panspandas
#tamfsymposium2024
#thealexmanfullfund

It is very exciting to announce that The Alex Manf

It is very exciting to announce that The Alex Manfull Fund is growing and expanding. Meet our new President: Daniela Sosa-Sarkar, PsyD, who came onboard in 2023, and now moves to the helm with a great knowledge base in this area and tremendous enthusiasm that will propel our initiatives forward.

Read about these changes in today’s press release (link in bio).

#tamfboardofdirectors
#thealexmanfullfund
#panspandas
#pandaspans

THIS is why we organize symposia like the one taki

THIS is why we organize symposia like the one taking place on Saturday, November 2 in Portsmouth, NH.

More doctors — and medical and mental health professionals, speech therapists, occupational therapists, teachers, parents, policy makers— need to know about Neuroimmune Psychiatric Disorders such as PANDAS and PANS.

With early diagnosis and appropriate treatment, these disorders are treatable.

The 2024 Alex Manfull Fund PANDAS/PANS Symposium is full but the sessions will be recorded and available (at no cost) on our website.

#panspandas
#thealexmanfullfund
#tamfsymposium2024
#missingacmanfull
#dialoguesaveslives

Continuing to highlight the outstanding lineup of

Continuing to highlight the outstanding lineup of speakers coming to The 2024 Alex Manfull Fund PANDAS/PANS Symposium on November 2, 2024.
So much to learn.

#panspandas #pandaspans #tamfsymposium2024 #dialoguesaveslives #portsmouthnh

Dr Beth Latimer is one of the nation’s most high

Dr Beth Latimer is one of the nation’s most highly regarded neurologists — and a pioneer — in the field of infection-associated neuroimmune disorders. Dr Latimer is part of our extraordinary line-up of clinicians and researchers at The 2024 AlexManfull Fund PANDAS/PANS Symposium.

There are a few more seats and today (10/25) is the last day to register. This is an in-person event! Link to register is in the bio.

#tamfsymposium2024
#panspandas
#pandaspans
#dialoguesaveslives
#thealexmanfullfund

Here are some of the comments made by the attendee

Here are some of the comments made by the attendees of the 2022 Alex Manfull Fund PANDAS/PANS Symposium .

The 2024 symposium also promises to be incredibly informative and inspirational! Here is the 2024 program: https://thealexmanfullfund.org/tamf-2024-symposium-schedule/

Registration link in the bio. (Not many seats left!)

#tamfsymposium2024
#panspandas
#dialoguesaveslives

Our PANDAS/PANS AWARENESS DAY MADE THE NEWS! THIS

Our PANDAS/PANS AWARENESS DAY MADE THE NEWS! THIS explains why the Memorial Bridge was recently lit in green. Thanks, Skip, for writing this informative article!

Full article: https://thealexmanfullfund.org/category/Press/

#neuroimmunepsychiatricdisorders
#thealexmanfullfund
#pandaspans
#lightup4pans

Mikki Tal, PhD and Shannon Delaney, MD will be tal

Mikki Tal, PhD and Shannon Delaney, MD will be talking about vector-borne diseases, Bartonella and Borrelia, at The Alex Manfull Fund PANDAS/PANS Symposium. Research subjects that will leave you thinking….

https://thealexmanfullfund.org/tamf-2024-symposium/

#tamfsymposium2024
#dialoguesaveslives
#panspandas
#pandaspans

At yesterday’s incredibly informative “Edge o

At yesterday’s incredibly informative “Edge of Medicine” Summit for Innovators in Health, made possible by the Steven & Alexandra Cohen Foundation, some of the best and the brightest minds in infection-associated chronic conditions (e.g., Long Covid, Long Lyme Disease), neuropsychiatry, psychedelics research, behavioral health, menopause, and women’s health were there.

Michael Pollan is a NYT best-selling author, educator, activist, and self-proclaimed not-a-scientist.

In this field of highly complex disorders, this sage quote really resonated with me. (I captured it as best I could.)

#michaelpollan
#stevenandalexandracohenfoundation
#edgeofmedicine
#thealexmanfullfund
#infectionassociatedchronicconditions
#neuroimmunepsychiatricdisorders
#pandaspans
#panspandas

ATTENTION:Deadline extended to Saturday 10/19th at

ATTENTION:Deadline extended to Saturday 10/19th at 7:00pm or until we fill up the space.

On November 2, The Alex Manfull Fund will have its Third Symposium: A ZONE FOR DIALOGUE: Advancing Understanding and Treatment of Neuroimmune Psychiatric Disorders, such as PANDAS & PANS.

https://thealexmanfullfund.org/tamf-2024-symposium/ (https://thealexmanfullfund.org/tamf-2024-symposium/)

We continue to advance our mission of educating health providers about these debilitating disorders as well as supporting research to better understand these disorders and develop better treatments. Our target audience for the symposium is physicians, psychologists, nurses, and other health practitioners. Speech pathologists, OT and PT professionals also welcome.

If you would like to support our efforts, we are offering the opportunity to honor a family member or friend with a “recognition card” in our symposium program. The program will be given to all speakers and attendees as well as to those who purchase a spot in the program.

With a contribution of $100 to TAMF, you can display your loved one’s name in the program in one of the formats listed below. Submission deadline is 10/19/24. Space in the program is limited.

For more information or to purchase a recognition card in the program:

https://secure.lglforms.com/form_engine/s/ht1RnYW_gu1THE5-wMdUvQ

The funds received will help cover the costs associated with the symposium. At the same time, it is an opportunity that will serve the greater purpose of recognizing the person at the center of the illness.

Thank you for your support.

The theme of The Alex Manfull PANDAS/PANS Symposiu

The theme of The Alex Manfull PANDAS/PANS Symposium (November 2 in Portsmouth, NH) is “Dialogue Saves Lives.”

In addition to traditional presentations, we will have panel discussions and “Lightning Round” talks. One of our panels is featured here — audience members will be able to ask this clinical panel questions about PANDAS/PANS.

To see all the speakers and the full program please visit: https://thealexmanfullfund.org/tamf-2024-symposium-schedule/ (link in bio). (Note: We are very sorry to report that, due to unforeseen circumstances, Dr Kiki Chang regrets he will not be able to attend .)

#dialoguesaveslives
#tamf2024
#thealexmanfulfund
#pandaspans
#panspandas
#neuroimmunepsychiatricdisorders

The Alex Manfull PANDAS/PANS Symposium takes place

The Alex Manfull PANDAS/PANS Symposium takes place on November 2, 2024 in Portsmouth, NH. Called “A Zone for Dialogue: Advancing Understanding and Treatment of Neuroimmune Psychiatric Disorders such as PANDAS and PANS,” this day-long meeting will bring together some of the best and brightest clinicians and researchers from multiple disciplines to discuss their observations and research to advance understanding and treatment of these disorders. In short, they will talk to one another and with those in attendance. That’s how we will make progress.

Dr Mark Pasternack, renowned Infectious Disease physician, will share some of his thoughts on PANDAS/PANS and the infectious triggers that keep him up at night.

To see the other speakers and to register, please visit https://thealexmanfullfund.org/tamf-2024-symposium/

The target audience is physicians and other health practitioners. Our goal is to educate these professionals so that patients with neuroimmune disorders will be recognized and treated early and appropriately.

#dialoguesaveslives
#tamfsymposium2024
#pandaspans
#pans
#neuroimmunepsychiatricdisorders
#thealexmanfullfund

Lighting the Memorial Bridge green ignited our spi

Lighting the Memorial Bridge green ignited our spirits to work harder to change the world of Medicine.
#thealexmanfullfund
#pandaspans
#panspandas
#panspandasawarenessday
#lightup4pans

The Alex Manfull Fund will hold its third PANDAS/P

The Alex Manfull Fund will hold its third PANDAS/PANS symposium on November 2nd in Portsmouth, NH (in person) — less than three weeks from now. There are still seats available.

Our opening presentation of our day-long event is titled, “Recognizing and Providing Early Treatment of PANDAS/PANS,” given by Jennifer Frankovich, MD, MS; Juliette Madan, MD, MS; and Richard Morse, MD.

To see other speakers and to register, please visit: https://thealexmanfullfund.org/tamf-2024-symposium/
(link in bio)

The full list of speakers and the program will be posted soon.

We are grateful to our very generous sponsors:

@piscataquasavingsbank
@chinburgproperties
soleohealth
Two Anonymous Sponsors

#tamfsymposium2024
#azonefordialogue
#neuroimmunepsychiatricdisorders
#pandaspans
#panspandas
#pandaspansdialogue
#dialoguesaveslives

As PANDAS/PANS Awareness “Day” continues, toda

As PANDAS/PANS Awareness “Day” continues, today, Saturday October 12th found Towny in Burlington, VT for a 5K run/walk, organized by the Gaskell family to raise awareness about PANS/PANDAS.

WOW! Close to 200 people registered and most appeared to show up even though the gusts of wind could knock a small person off their feet (or make for great race times if blowing the right direction!).

The Gaskell family, having been impacted by PANDAS/PANS, has turned their difficult challenges into an event that will help the whole PANDAS/PANS community: they are organizing this first ever PANS/PANDAS Awareness Event in Vermont!

The Gaskell family is partnering with The Alex Manfull Fund to make this run/walk a benefit event for the Dartmouth Neuroimmune Psychiatric Disorder (NIPD) Clinic at Dartmouth Hitchcock Medical Center.

To register, learn more about the Gaskell family, please go to : bit.ly/VT-PP-5K

#familyfriendly
#5krunwalk
#panspandas
#pandaspans
#dartmouthneuroimmunepsychiatricdisorderclinic
#thealexmanfullfund
#panspandasawarenessday
@topfans

On November 2, The Alex Manfull Fund will have its

On November 2, The Alex Manfull Fund will have its Third Symposium: A ZONE FOR DIALOGUE: Advancing Understanding and Treatment of Neuroimmune Psychiatric Disorders, such as PANDAS & PANS.

https://thealexmanfullfund.org/tamf-2024-symposium/ (https://thealexmanfullfund.org/tamf-2024-symposium/)

We continue to advance our mission of educating health providers about these debilitating disorders as well as supporting research to better understand these disorders and develop better treatments. Our target audience for the symposium is physicians, psychologists, nurses, and other health practitioners. Speech pathologists, OT and PT professionals also welcome.

If you would like to support our efforts, we are offering the opportunity to honor a family member or friend with a “recognition card” in our symposium program. The program will be given to all speakers and attendees as well as to those who purchase a spot in the program.

With a contribution of $100 to TAMF, you can display your loved one’s name in the program in one of the formats listed below. Submission deadline is 10/17/24. Space in the program is limited. All contributions can be done via the link below:

https://secure.lglforms.com/form_engine/s/eK3YR0sju9eaosdrASonXg

The funds received will help cover the costs associated with the symposium. At the same time, it is an opportunity that will serve the greater purpose of recognizing the person at the center of the illness.

For more information or to purchase a recognition card in the program, please direct message me.

Thank you for your support.

There was an array of emotions at our PANDAS/PANS

There was an array of emotions at our PANDAS/PANS Awareness Day event — from happiness that so many of us were together to sadness as we recognize how terribly serious these disorders are. They turn lives into turmoil, change the course of lives, and end lives.

A sense of community is soothing and healing. At the base of the Memorial Bridge in Portsmouth, NH,
those feelings were palpable.

#pandaspansawareness
#pandaspansawarenessday
#lightup4pans
#lightupforpandaspans
#missingacmanfull
#memorialbridgeportsmouthnh
#thealexmanfullfund

What a gift to have so many people come out to rai

What a gift to have so many people come out to raise awareness about PANDAS/PANS last night in Portsmouth, NH.

#pandaspansawareness #panspandasawarenessday #thealexmanfullfund #missingacmanfull #lightup4pans #portsmouthnh #memorialbridgeportsmouth

The Northern Lights, as seen in Rye, New Hampshire

The Northern Lights, as seen in Rye, New Hampshire tonight.

Could this be Mother Nature’s way of recognizing PANDA’S Awareness Day?

#northernlights
#missingacmanfull
#ryenh #thealexmanfullfund

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