Tag: PANS

Lighting Up for PANDAS/PANS

Community NewsPublished October 22, 2024 PORTSMOUTH — If you happened to cross over or view the World War I Memorial Bridge connecting Portsmouth and Kittery last week, you might have noticed that all of the bright… Read More

‘Let me die’: the mysterious syndrome changing children overnight

Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three Louise Eccles | Sunday May 05 2024, 12.01am BST, The… Read More

The Alex Manfull Fund welcomes distinguished scientists to Inaugural Medical and Scientific Advisory Board

LIFESTYLE Portsmouth HeraldPublished 2:00 p.m. ET Dec. 13, 2023 | Updated 2:01 p.m. ET Dec. 13, 2023 PORTSMOUTH — The Alex Manfull Fund, a leading nonprofit combating infection-associated immune-mediated neuropsychiatric disorders like PANDAS and PANS, has… Read More

Technical Report: Self-Harm and Suicidality in Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Immunopsychiatric Disorders

My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a… Read More

New Massachusetts advisory council to help kids with rare condition, local moms raising awareness

An article in the Boston Herald about an amazing, persevering group of women — with some help from State Reps like Josh Cutler — accomplished what some thought impossible: the establishment of an advisory council on… Read More