Community NewsPublished October 22, 2024 PORTSMOUTH — If you happened to cross over or view the World War I Memorial Bridge connecting Portsmouth and Kittery last week, you might have noticed that all of the bright… Read More
Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three Louise Eccles | Sunday May 05 2024, 12.01am BST, The… Read More
LIFESTYLE Portsmouth HeraldPublished 2:00 p.m. ET Dec. 13, 2023 | Updated 2:01 p.m. ET Dec. 13, 2023 PORTSMOUTH — The Alex Manfull Fund, a leading nonprofit combating infection-associated immune-mediated neuropsychiatric disorders like PANDAS and PANS, has… Read More
My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a… Read More
An article in the Boston Herald about an amazing, persevering group of women — with some help from State Reps like Josh Cutler — accomplished what some thought impossible: the establishment of an advisory council on… Read More
Tag: PANS
Lighting Up for PANDAS/PANS
Posted on October 23, 2024 by bmanfull@comcast.net
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Community NewsPublished October 22, 2024 PORTSMOUTH — If you happened to cross over or view the World War I Memorial Bridge connecting Portsmouth and Kittery last week, you might have noticed that all of the bright… Read More
Category: Newspaper Article, Press Tags: Chris Sununu, John Tabor, Kate Cook, Kayla Caulfield, Memorial Bridge, Nancy Dougherty, PANDAS, PANS, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, The Alex Manfull Fund
‘Let me die’: the mysterious syndrome changing children overnight
Updated on May 10, 2024 by bmanfull@comcast.net
Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three Louise Eccles | Sunday May 05 2024, 12.01am BST, The… Read More
Category: Newspaper Article, What I'm Reading Now Tags: Birmingham Children’s Hospital, Dr Ming Lim, PANDAS, PANS, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Postinfectious Autoimmune Basal Ganglia Encephalitis, Royal College of Psychiatrists, the Royal College of Paediatrics and Child Health, The Times
The Alex Manfull Fund welcomes distinguished scientists to Inaugural Medical and Scientific Advisory Board
Updated on December 14, 2023 by bmanfull@comcast.net
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LIFESTYLE Portsmouth HeraldPublished 2:00 p.m. ET Dec. 13, 2023 | Updated 2:01 p.m. ET Dec. 13, 2023 PORTSMOUTH — The Alex Manfull Fund, a leading nonprofit combating infection-associated immune-mediated neuropsychiatric disorders like PANDAS and PANS, has… Read More
Category: Online Article, Press, Press Release Tags: Immune System, Medical and Scientific Advisory Board, PANDAS, PANS, The Alex Manfull Fund
Technical Report: Self-Harm and Suicidality in Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Immunopsychiatric Disorders
Updated on June 27, 2023 by bmanfull@comcast.net
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My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a… Read More
Category: What I'm Reading Now Tags: Immunopsychiatric Disorders, PANDAS, PANS, Suicidality
New Massachusetts advisory council to help kids with rare condition, local moms raising awareness
Updated on November 25, 2022 by bmanfull@comcast.net
An article in the Boston Herald about an amazing, persevering group of women — with some help from State Reps like Josh Cutler — accomplished what some thought impossible: the establishment of an advisory council on… Read More
Category: Press Tags: Jennifer Vitelli, Massachusetts Department of Health Advisory Council, PANDAS, PANDAS awareness day at the State House, PANS, Rep. Josh Cutler, Sheilah Gauch