LIFESTYLE Portsmouth HeraldPublished 2:00 p.m. ET Dec. 13, 2023 | Updated 2:01 p.m. ET Dec. 13, 2023 PORTSMOUTH — The Alex Manfull Fund, a leading nonprofit combating infection-associated immune-mediated neuropsychiatric disorders like PANDAS and PANS, has… Read More
My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a… Read More
by Karen DandurantPortsmouth HeraldPublished September 30, 2022 PORTSMOUTH — William “Towny” and Susan Manfull, who lost their daughter four years ago, have directed their pain into a lifelong mission to understand what took the life of their child… Read More
An article in the Boston Herald about an amazing, persevering group of women — with some help from State Reps like Josh Cutler — accomplished what some thought impossible: the establishment of an advisory council on… Read More
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Tag: PANDAS
The Alex Manfull Fund welcomes distinguished scientists to Inaugural Medical and Scientific Advisory Board
Updated on December 14, 2023 by bmanfull@comcast.net
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LIFESTYLE Portsmouth HeraldPublished 2:00 p.m. ET Dec. 13, 2023 | Updated 2:01 p.m. ET Dec. 13, 2023 PORTSMOUTH — The Alex Manfull Fund, a leading nonprofit combating infection-associated immune-mediated neuropsychiatric disorders like PANDAS and PANS, has… Read More
Category: Online Article, Press, Press Release Tags: Immune System, Medical and Scientific Advisory Board, PANDAS, PANS, The Alex Manfull Fund
Technical Report: Self-Harm and Suicidality in Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Immunopsychiatric Disorders
Updated on June 27, 2023 by bmanfull@comcast.net
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My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a… Read More
Category: What I'm Reading Now Tags: Immunopsychiatric Disorders, PANDAS, PANS, Suicidality
Portsmouth parents who lost daughter Alex Manfull at 26 bring PANDAS symposium to city
Updated on March 15, 2023 by bmanfull@comcast.net
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by Karen DandurantPortsmouth HeraldPublished September 30, 2022 PORTSMOUTH — William “Towny” and Susan Manfull, who lost their daughter four years ago, have directed their pain into a lifelong mission to understand what took the life of their child… Read More
Category: Newspaper Article, Press Tags: PANDAS, PANDAS/PANS Symposium, PANDAS/PANS: Recognizing, Postinfectious Autoimmune Basal Ganglia Encephalitis, Susan Manfull, Understanding and Treating Immune-Mediated Neuropsychiatric Disorders
New Massachusetts advisory council to help kids with rare condition, local moms raising awareness
Updated on November 25, 2022 by bmanfull@comcast.net
An article in the Boston Herald about an amazing, persevering group of women — with some help from State Reps like Josh Cutler — accomplished what some thought impossible: the establishment of an advisory council on… Read More
Category: Press Tags: Jennifer Vitelli, Massachusetts Department of Health Advisory Council, PANDAS, PANDAS awareness day at the State House, PANS, Rep. Josh Cutler, Sheilah Gauch
À Table! Château Barbebelle and Gérard Isirdi Come to the Table To Raise Awareness about PANDAS, The Post-Infectious Autoimmune Basal Ganglia Encephalitis That Took the Life of Alex Manfull
Updated on January 16, 2023 by Susan Manfull
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Category: Online Article, Press Tags: 2017 Château Barbebelle Madeleine Red, À Table!, Alex Manfull, Alexandra Manfull, and Patrick Walsh, Archive, Basal Ganglia Encephalitis, Claire Fleming, David Bontaz, david scott allen, De La Cuisine Au 20 Wine and Épicerie, Gérard and Christine Isirdi, Gérard Isirdi, Hervé Giustiniani, Impression Varoise d’Étiquettes, Jacques Navarre, Lisa Harper, Madeleine Premmereur, Martin Kolk, Pamela O’Neill, PANDAS, Patti Thornton, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Phineas Press, Pierre Schott, Postinfectious Autoimmune Basal Ganglia Encephalitis, Recent Post, Rick Meyerkopf, Robin Lurie-Meyerkopf, Roquevaire, Susan Kress Hamilton, Susan Manfull, The Alex Manfull Memorial Fund, William Manfull, Win Rhoades
À Table! Château Barbabelle and Gérard Isirdi Come to the Table To Raise Awareness about PANDAS, The Post-Infectious Autoimmune Basal Ganglia Encephalitis That Took the Life of Alex Manfull
Updated on January 15, 2023 by Susan Manfull
Leave a Comment
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Category: Online Article Tags: 2017 Château Barbebelle Madeleine Red, À Table!, Alex Manfull, Alexandra Manfull, and Patrick Walsh, Archive, Basal Ganglia Encephalitis, Claire Fleming, David Bontaz, david scott allen, De La Cuisine Au 20 Wine and Épicerie, Gérard and Christine Isirdi, Gérard Isirdi, Hervé Giustiniani, Impression Varoise d’Étiquettes, Jacques Navarre, Lisa Harper, Madeleine Premmereur, Martin Kolk, Pamela O’Neill, PANDAS, Patti Thornton, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Phineas Press, Pierre Schott, Postinfectious Autoimmune Basal Ganglia Encephalitis, Recent Post, Rick Meyerkopf, Robin Lurie-Meyerkopf, Roquevaire, Susan Kress Hamilton, Susan Manfull, The Alex Manfull Memorial Fund, William Manfull, Win Rhoades