Community NewsPublished October 22, 2024 PORTSMOUTH — If you happened to cross over or view the World War I Memorial Bridge connecting Portsmouth and Kittery last week, you might have noticed that all of the bright… Read More
Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three Louise Eccles | Sunday May 05 2024, 12.01am BST, The… Read More
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Tag: Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus
Lighting Up for PANDAS/PANS
Posted on October 23, 2024 by bmanfull@comcast.net
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Community NewsPublished October 22, 2024 PORTSMOUTH — If you happened to cross over or view the World War I Memorial Bridge connecting Portsmouth and Kittery last week, you might have noticed that all of the bright… Read More
Category: Newspaper Article, Press Tags: Chris Sununu, John Tabor, Kate Cook, Kayla Caulfield, Memorial Bridge, Nancy Dougherty, PANDAS, PANS, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, The Alex Manfull Fund
‘Let me die’: the mysterious syndrome changing children overnight
Updated on May 10, 2024 by bmanfull@comcast.net
Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three Louise Eccles | Sunday May 05 2024, 12.01am BST, The… Read More
Category: Newspaper Article, What I'm Reading Now Tags: Birmingham Children’s Hospital, Dr Ming Lim, PANDAS, PANS, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Postinfectious Autoimmune Basal Ganglia Encephalitis, Royal College of Psychiatrists, the Royal College of Paediatrics and Child Health, The Times
À Table! Château Barbebelle and Gérard Isirdi Come to the Table To Raise Awareness about PANDAS, The Post-Infectious Autoimmune Basal Ganglia Encephalitis That Took the Life of Alex Manfull
Updated on January 16, 2023 by Susan Manfull
The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Category: Online Article, Press Tags: 2017 Château Barbebelle Madeleine Red, À Table!, Alex Manfull, Alexandra Manfull, and Patrick Walsh, Archive, Basal Ganglia Encephalitis, Claire Fleming, David Bontaz, david scott allen, De La Cuisine Au 20 Wine and Épicerie, Gérard and Christine Isirdi, Gérard Isirdi, Hervé Giustiniani, Impression Varoise d’Étiquettes, Jacques Navarre, Lisa Harper, Madeleine Premmereur, Martin Kolk, Pamela O’Neill, PANDAS, Patti Thornton, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Phineas Press, Pierre Schott, Postinfectious Autoimmune Basal Ganglia Encephalitis, Recent Post, Rick Meyerkopf, Robin Lurie-Meyerkopf, Roquevaire, Susan Kress Hamilton, Susan Manfull, The Alex Manfull Memorial Fund, William Manfull, Win Rhoades
À Table! Château Barbabelle and Gérard Isirdi Come to the Table To Raise Awareness about PANDAS, The Post-Infectious Autoimmune Basal Ganglia Encephalitis That Took the Life of Alex Manfull
Updated on January 15, 2023 by Susan Manfull
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The above title would be (more) unwieldy if I included all the names of the friends, family, and strangers who have contributed to making the À Table! project a reality. There are many people to whom my husband and I are deeply grateful. With the launch of this project, more people can help to raise awareness about PANDAS and PANS: purchase a bottle of the wine, made especially for The Alex Manfull Memorial Fund, invite friends and family to your table, and enjoy the wine with a meal as you help spread the word about this horrific disorder. Raise your glass to the defeat of PANDAS and send us a photo that can be posted online on Alex’s birthday, September 7th. All proceeds will go to further research on the causes and treatment of Post-infectious Autoimmune Basal Ganglia Encephalitis disorders such as PANDAS and PANS.
There are no words to describe how my husband and I felt when our 26-year-old daughter, Alexandra “Alex” Manfull, lost her life to PANDAS, a basal ganglia encephalitis disorder triggered by Group A Streptococcus. Devastated may come closest. Alex was our only child and we were a very close family.
Category: Online Article Tags: 2017 Château Barbebelle Madeleine Red, À Table!, Alex Manfull, Alexandra Manfull, and Patrick Walsh, Archive, Basal Ganglia Encephalitis, Claire Fleming, David Bontaz, david scott allen, De La Cuisine Au 20 Wine and Épicerie, Gérard and Christine Isirdi, Gérard Isirdi, Hervé Giustiniani, Impression Varoise d’Étiquettes, Jacques Navarre, Lisa Harper, Madeleine Premmereur, Martin Kolk, Pamela O’Neill, PANDAS, Patti Thornton, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus, Phineas Press, Pierre Schott, Postinfectious Autoimmune Basal Ganglia Encephalitis, Recent Post, Rick Meyerkopf, Robin Lurie-Meyerkopf, Roquevaire, Susan Kress Hamilton, Susan Manfull, The Alex Manfull Memorial Fund, William Manfull, Win Rhoades