My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a must-read for all those interested in fully understanding immune-mediated neuropsychiatric disorders such as PANS and PANDAS. The material, based on survey input from 240 mainly parental respondents, is meticulously (and I hasten to add sensitively) presented and it provides a wealth of findings that, I hope, will bear further research. For example, “Those who had not attempted suicide nor ever had self-harming behavior (n = 100) reported an average of 18.6 symptoms. Those who attempted suicide and/or had self-harming behavior (n = 110) reported a higher number of symptoms, with an average of 24.8. Those who made their first suicide attempt before the age of 11 (n = 8) had a significantly higher number of symptoms, with an average of 33.8. ” (page 9)
Technical Report: Self-Harm and Suicidality in Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Immunopsychiatric Disorders
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Updated: June 27, 2023 by bmanfull@comcast.net
My brief thoughts: Gunilla Gerland, ex-Chair of SANE, the Swedish PANS/PANDAS organization (2013-2020), recently translated her (2021 – 2023) work to create this English version. Although a difficult subject about which to read, it is a must-read for all those interested in fully understanding immune-mediated neuropsychiatric disorders such as PANS and PANDAS. The material, based on survey input from 240 mainly parental respondents, is meticulously (and I hasten to add sensitively) presented and it provides a wealth of findings that, I hope, will bear further research. For example, “Those who had not attempted suicide nor ever had self-harming behavior (n = 100) reported an average of 18.6 symptoms. Those who attempted suicide and/or had self-harming behavior (n = 110) reported a higher number of symptoms, with an average of 24.8. Those who made their first suicide attempt before the age of 11 (n = 8) had a significantly higher number of symptoms, with an average of 33.8. ” (page 9)
Category: What I'm Reading Now Tags: Immunopsychiatric Disorders, PANDAS, PANS, Suicidality