Donors: Frequently asked questions

What happens to the brain after donation?

The decision to undergo a medical autopsy and provide tissues for a brain bank is a very personal one for patients and their families. After consent forms have been signed by the family, our team will respectfully perform a brain autopsy. Results from the autopsy will be shared with the family. The brain tissue will be carefully and properly stored at our brain bank for future research studies by requesting researchers. 

Is there a fee associated with my donation? 

No, there is no fee associated with donation while we have institutional, philanthropic, and/or grant support for this activity. 

Can I still donate if I haven’t been diagnosed with PANS/PANDAS?

Participants who have been diagnosed with PANS/PANDAS are eligible to donate, as well as those without neurological disease who can serve as “control – no neurological disease” representatives. We will accept tissue donations in the GBB with diagnoses ranging from individuals with no CNS diseases to other neuroimmune related disorders, such as, Sydenham chorea, Encephalitis, and Lyme disease.

Does my family have to be affiliated with MedStar Georgetown University Hospital (MGUH) or Georgetown University to become a donor?

Families do not have to be affiliated with MGUH or Georgetown to donate tissues at this time.