ProPANS IVIG Study

Did your child recently start showing Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS/PANDAS) symptoms? 

Consider enrolling them in the ProPANS IVIG study. 

This study will look at how well an IVIG study drug* may work for children 6 years-17 years of age who have PANS/PANDAS. Other study requirements apply. 

*This drug has been FDA approved to address other conditions, but it is not FDA approved for the use of addressing PANS symptoms in children. 

Study participants receive at no cost: 

  • Access to a new IVIG study drug that may help with managing PANS 
    • All participants will receive the study drug and placebo (no active ingredients). Participants will be randomly assigned to receive the study drug in either the first or second half of the study 
  • Study support and study-related monitoring by a healthcare team 
  • Help with study-related travel expenses, including reimbursements for lodging, transportation, and meals 
  • Education about PANS/PANDAS 
  • The opportunity to help advance PANS research 

The ProPANS study will be conducted at a select number of medical universities and institutions. For more information or to learn if your child may qualify, please contact: 

Email: PANStrial@octapharma.com 
New Phone Number: (888) 885-4598 

Team Octapharma
at The Alex Manfull Fund 5K

Those of you that participated in The Alex Manfull Fund 5K in Washington, DC on June 3, 2023 may have met the members of the Octapharma team. Below are several photos from our 5K event and their team. Click on the photo to scroll through the pictures manually. The IVIG study is critically important to our community and we hope you will support their efforts.